Detroit, MI, September 24, 2026 — A 14-year-old resident of Michigan is channeling her personal journey with a rare neurological disorder into advocacy, aiming to increase awareness and support for research into Charcot-Marie-Tooth (CMT) disease. Ava Little, who was diagnosed with CMT at the age of three, has dedicated herself to making a difference for others affected by the condition.

Charcot-Marie-Tooth disease is a group of inherited disorders that affect the peripheral nerves, which connect the brain and spinal cord to muscles and sensory organs. It can cause muscle weakness, sensory loss, and skeletal deformities.

Little’s commitment to her mission is evident through her active participation in community events and recognition from local media. She was recently honored with a Go-4-It Award from Local 4, acknowledging her efforts and dedication. This award highlights her significant contributions to raising the profile of CMT.

Further demonstrating her leadership and commitment, Ava captained a team for the annual Walk for CMT, an event held in Lansing. These walks are crucial for bringing together the CMT community, raising funds for research, and fostering a sense of solidarity among patients, families, and researchers.

The specific date of the Go-4-It Award presentation and the most recent Walk for CMT were not provided. However, these actions underscore Ava Little’s proactive approach to transforming her own experiences into a catalyst for broader change and support within the CMT community.

Her initiative serves as an example of how young individuals can become powerful advocates for health awareness and research, contributing valuable momentum to the ongoing efforts to understand and treat conditions like Charcot-Marie-Tooth disease.



Story summarized from the original created by Brandon Carr, Jay Scott Smith on www.clickondetroit.com, see more information here.

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